GRAPH Int aims to promote programmes of genetic literacy for health professionals, specific training for public health genetics specialists and development of educational materials, courses, workshops and seminars
GENETICS EDUCATION PROGRAMS
Genetics is relevant now
This program includes audio clips from genetics nursing experts and from patients to illustrate current genetics applications in nursing practice. Content addresses the relevance of genetics in infectious disease, oncology nursing, and common disease. NCHPEG and the Department of Nursing at the University of Cincinnati developed this Web-based educational program, available at www.gepn.cchmc.org, or go to www.nchpeg.org and choose Genetics is Relevant from the drop down menu labeled "Selected Health Disciplines."
Genetics in the Practice of Speech-Language Pathology and Audiology
Speech-language pathology and audiology students, faculty, and professionals comprise the audience for a new genetics-education program on the Web: Genetics in the Practice of Speech-Language Pathology and Audiology. The overarching goal of the instruction is to provide practical examples of how genetics is clinically relevant for patients and families and how it may change speech-language and audiology practice.
The site is available at no cost, and its case studies, supportive PowerPoint presentations, PDF articles, and genetics primer can be easily incorporated in the classroom. For practitioners, ASHA and AAA have partnered with NCHPEG to offer 0.3 CEUs at a minimal cost for completing evaluation questions.
Genetics in the Practice of Speech-Language Pathology and Audiology was developed by NCHPEG (the National Coalition for Health Professional Education in Genetics - pronounced "NITCH-peg") in partnership with the American Speech-Language-Hearing Association, the University of Cincinnati, and the National Society of Genetic Counselors. Funding was provided by the Health Resources and Services Administration, the National Human Genome Research Institute, the Office of Rare Diseases, and the National Institute on Deafness and other Communication Disorders.
shla.nchpeg.org/
Institute of Population Health (IPH)
The Institute of Population Health (IPH) is a consortium of ten faculties of the University of Ottawa (Arts, Education, Graduate and Postdoctoral Studies,
Health Sciences, Law, Science, Social Sciences, Medicine, Management and Engineering). As a consortium, the IPH coordinates, initiates, and supports
interfaculty and multiparty, transdisciplinary research and training in Population Health.
The Institute aspires to add to the knowledge base in population health, and to work with established groups and others to make a contribution.
The Institute approach is to mobilize leading-edge research programs, transdisciplinary in nature, spanning the whole spectrum of determinants of health
and well-being from sociocultural and economic through environmental, clinical and molecular levels. The true power of population health results from the
interplay of multiple sectors through the interaction of determinants, resulting in multiple interventions and policies for the betterment of health
and well-being. http://www.iph.uottawa.ca/English/welcome.htm
CENTRES FOR GENETIC EDUCATION
GeneSens is a Canadian network of researchers and students committed to research in genetics health policy and services.
GeneSens goals are to generate sustainable interdisciplinary research capacity to address the scientific questions raised in relation
to developing evidence-based genetics health policy and services; to develop interdisciplinary research into effective, efficient,
appropriate and sustainable genetics health services; and to develop a two-way process of KT directed at key stakeholders.
http://genesens.net/public/en
National Coalition for Health Professional Education in Genetics (NCHPEG) National Coalition for Health
Professional Education in Genetics (NCHPEG) is an "organization of organizations" committed to a national effort to promote
health professional education and access to information about advances in human genetics. The mission of NCHPEG is to promote
health professional education and access to information about advances in human genetics to improve the health care of the nation.
NHS National Genetics Education and Development Centre The NHS National Genetics Education and Development
Centre aims to facilitate the integration of genetics education and training within the NHS. Through collaboration with colleagues,
the Centre aims to: engage, consult and influence professional and other organisations at a high level to secure the integration
of genetics into mainstream health care services, determine curricula, skill and competency frameworks for different NHS staff
groups following needs assessments, develop genetics educational materials and resources, facilitate the delivery of education
in genetics using existing undergraduate and postgraduate programmes and "training the trainers" courses.
http://www.geneticseducation.nhs.uk
Public Health Genetics Unit, Cambridge The public Health Genetics Unit provides courses in public health genetics
for the university of Cambridge medical undergraduate course in public health, Masters of studies in Public Health and Master of
Philosophy in Epidemiology. It provides 6-month placements for public health specialists in training. These placements include an
attachment to Cambridge Regional Genetics clinical and laboratory services and involvement in the full range of PHGU multi-disciplinary
work. The PHGU also provides shorter courses such as the 5 day Genetics and Health Policy course, and has the facility for visiting
fellowships and other shorter or longer attachments by arrangement.
University of Michigan: Public Health Genetics Interdepartmental Concentration (PHGIC) Students obtain MPH,
MS or PhD degrees in one of the five departments of the School of Public Health following a curriculum that includes introduction
to basic science of genetics, genetics in epidemiology, ethical, legal and social issues and opportunities to gain practical experience
through internships and independent studies.
University of Washington: Multidisciplinary program for Public Health Genetics in the context of law, ethics and
policy. The academic component of the Public Health Genetics program consists of a two year graduate programme leading to a Master of
Public Health (MPH) degree in Public Health Genetics and a graduate certificate program.
KEY WEBSITES
Office of Genomics and Disease Prevention, Centers for Disease Control and Prevention
Was created in 1998 to integrate genomics into public health research, policy and programs in the US. Established and coordinates the HuGE Net (Human Genome and Epidemiology Network) and the EGAPP (Evaluation of Genomic Applications in Practice and Prevention) initiatives. http://www.cdc.gov/genomics
Genomic Competencies for the Public Health Workforce, USA, 2001
An interdisciplinary team of people actively working in local, state and federal public health programs formulated
this document. The genomic competencies are for those individuals without formal training in genetics who are
involved in administration, clinical services, epidemiology, laboratory services, environmental services, health
education (including social work, nursing and other disciplines in public health that provide internal or outreach
education), and volunteers involved in public health and local, state, and national boards of health.
http://www.cdc.gov/genomics/training/competencies/comps.htm
Centers for genomics and Public Health
Established by collaboration between the US Centers for Disease Control and Prevention and the Association of
Schools of Public Health, and located at the Universities of Michigan, Washington and North Carolina. The Centers
contribute to the knowledge base, provide technical assistance to local, state and regional public health
organizations and develop and deliver training to the public health work force. http://www.sph.unc.edu/nccgph http://www.sph.umich.edu/genomics http://depts.washington.edu/cgph
Genomics, Health and Society
A multidisciplinary research centre located at the Toulouse Genepole, University of Toulouse, France, and
including biologists, clinicians, geneticists, lawyers, sociologists and economists http://genepole-toulouse.prd.fr/layout.php?page=home3&id=100&lang=eng
HumGen
The HumGen website deals with the social, ethical and legal aspects of human genetics. Many different issues are
explored, such as confidentiality of genetic data, consent to genetic testing, and stem cell research. The Internet
site features various tools that will help you search for relevant information. http://www.humgen.umontreal.ca/int/
